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Former Pilot Receives ‘Life-Altering’ Treatment for Longtime Condition

Despite having hemophilia B, Greg Heifner became certificated to fly recreational aircraft.

Greg Heifner flying a Cessna 421.
Greg Heifner flying a Cessna 421 [Courtesy: Greg Heifner]
Gemini Sparkle

Key Takeaways:

  • Greg Heifner, diagnosed with severe hemophilia B as a child, defied physical limitations and initial FAA restrictions to realize his lifelong dream of flying engine-powered aircraft, eventually obtaining a waiver due to his demonstrated ability.
  • Despite a heart attack ending his piloting career, Heifner continued to pursue his passions and later received a groundbreaking one-time gene therapy (Hemgenix) that significantly improved his hemophilia, eliminating the need for further medication.
  • Heifner's story is a testament to resilience and persistence, highlighting his determination to overcome profound health obstacles to achieve his dreams, and his belief that "where there's a will there's almost always a way."
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As a kid, Greg Heifner’s life was narrowly circumscribed.

Diagnosed with the blood clotting disorder hemophilia B, also known as Christmas disease, he suffered frequent bleeding into his joints, which reduced his mobility and left him reliant on a wheelchair. Something as minor as losing his baby teeth could have killed him.

Zach Vasile

Zach Vasile is a writer and editor covering news in all aspects of aviation. He has reported for and contributed to the Manchester Journal Inquirer, the Hartford Business Journal, the Charlotte Observer, and the Washington Examiner, with his area of focus being the intersection of business and government policy.

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